?

Log in

The Clubfoot Community [entries|archive|friends|userinfo]
Clubfoot Discussion Community

[ website | SCOI Clubfoot Info ]
[ userinfo | livejournal userinfo ]
[ archive | journal archive ]

It's over. Damn and Damn again [Aug. 26th, 2004|10:23 am]
Clubfoot Discussion Community

gimpyman
I am very sad and angry today. Last night I played my last official baseball game. I am hanging up the spikes. That's why I am sad. I am angry because I still have the desire to play, but can no longer deal with the pain. The game play is OK still, but it is the 4 days afterward that I can barely walk. The time I spend lying in bed and can't sleep because of the pain in my legs and feet. It is not fair to my family that I do this anymore. I'm angry because this is the 1st time in my life that I have ever let me feet dictate what I do, or what I want to do. I have ignored them up until now, and done what I want anyway (and dealt with the consequences later). My wife doesn't understand why I can't continue to play, but, as she said, "Don't play so hard". There is only one way to play the game, and that is with everything you have. It's not fair to your teammates if you don't.

I am thankful that I got the opportunity to do these things. I was not supposed to walk when I was born. I am thankful that I can still play with my children. There are so many others who are not as fortunate.

I am still sad.
link4 comments|post comment

Cross posted to my own journal [Jul. 7th, 2004|02:54 pm]
Clubfoot Discussion Community

saturn939
It was a rainy day today, so I went around barefoot on the porch and got out my camera.










My footprints :)


link1 comment|post comment

New Here [May. 20th, 2004|08:25 am]
Clubfoot Discussion Community
terisboys
My youngest is 20 months old and was born with bi-lateral positional clubfoot. He's been treated with physical therapy and night splints [Wheaton Braces - from 6 mo-12 mo] His feet have improved immensely since his diagnosis, but his right is about a size smaller and wider than his left - makes shoe shopping interesting to say the least.

Just wanted to say hi and introduce ourselves. Ryan doesn't seem to be aware that his feet are different - he walks, runs and climbs just like any other toddler. His PT was sure he wouldn't walk until closer to 2 years old, but he proved her wrong by walking at 13 months. He's a fighter and doesn't let anything get him down.
link3 comments|post comment

Just found this site [May. 11th, 2004|02:27 pm]
Clubfoot Discussion Community

gimpyman
I am 37 years old. I have Bi-lateral club feet. I had all the serial casting, and braces, and about 30 surgeries to my feet (O'donahue Twist, Tendon splits, Heal Cord lengthening, Bi-Lateral Triple Arthrodesis, etc). Most of the work was done a A.I. DuPont Institue in Wilmington, DE, and at Orange Memorial Hospital in Florida.

My feet were so severe that my parents were told that I would never walk without assistance. Boy were they wrong.

I played baseball growing up (when I wasn't in casts). I play for an over 30 team now. I have always been the slowest runner wherever I was, but I pitch and that's OK.

I used to consider my own feet a curse, but I don't anymore. I am thankful that I was born at a time when something could be done. I am thankful that a child born with the same kind of feet I had, now has a 95% chance of walking normally by the time they are 5. My feet are apart of me, and have contributed immensly to my character.

My feet hurt most of the time as arthritis has set into the feet due to all the surgeries; it may slow me down, but it rarely stops me.
link2 comments|post comment

new member [Apr. 11th, 2004|01:30 am]
Clubfoot Discussion Community

daisee
hello, i'm new around here. i can't believe i never thought of looking up a site like this before. my name is sadie, and i'm mother to a four and a half month old baby boy who has club feet. (both) he's recieving casting treatments, and the doctor we're going to (rumored to be the best in the state of nebraska) is talking about a posterior release when he's around 6 months of age.

having a baby with clubbed feet was the least of my worries. for everything that could have gone wrong, this is the least of them... completely correctable, although i'm told his big toe will be smaller than normal, and he'll have a crease in my foot... other than that i really don't know much about it. glad i found this place.
link3 comments|post comment

FREE, hott XXX brace modeling action! Exposed ankle! [Mar. 19th, 2004|11:17 am]
Clubfoot Discussion Community

saturn939
[mood |disappointeddisappointed]

Well, my new brace did come in the mail this morning. It's not exactly what I expected . . . I expected something more solid and sturdy and supporting, because when I was talking to the doctor, I kept saying how I just wanted something to support my ankle and take all the stress off of it, a brace that would "do most of the work" for my foot, so to speak. The brace I got, though, was like a "lite" version, with an X shaped piece of plastic in the back, not solid at all. But, I figured I'd give it a try, and the first thing I found was that I had to cut the toe part of the brace because it was too big and wouldn't fit in my shoe. Also, it's REALLY hard to get my shoe on with it because there's like a little square "lip" at the heel. But whatever, I got it on and I got my shoe on. When I'm just sitting down, it's really nice. The foot part of the brace keeps my foot at a 90 degree angle and stops it from flopping downwards. When I walk around, however, the brace doesn't even offer as much support as an Ace wrap. And that kind of pisses me off, because that's what I really wanted, something sturdy and supportive.

I think I'm gonna buy a pair of crutches right now before I even get to Milwaukee, and I'll use the brace to keep my foot from flopping around, but I really don't want to put any more pressure on it. It's just really bothering me, you know? And I think when I get back next week, I'm gonna see if I can just get a cast. Those make me feel really nice for a few weeks and gives my foot time to heal itself from whatever I did to it. LDSJfkljslfedjl;kafjdiojaiofdjkl;jajhf oiv unvn SO MUCH TROUBLE FOR THIS STUPID FOOT OF MINE. When I was little, I used to ask my mom to take me to the doctor and have him just cut it off. :(

FREE, hott XXX brace modeling action! Exposed ankle!Collapse )
link1 comment|post comment

Cross posted from my own journal again [Mar. 17th, 2004|10:20 pm]
Clubfoot Discussion Community

saturn939
[mood |moodymoody]

Around 3 o'clock today, me and my dad got in his car and he drove me to the Bronx to go see my cousin, who I affectionately call Mr. Dr. Brian. I never used to like Brian when I was little because I thought his personality was too outgoing and over-the-top, and he used to tease me mercilessly, but I have a soft spot in my heart for him now because he helps me out with my foot and he's a pretty nice guy after all. We got to Brian's office around 5 and waited until 5:30 when the orthotics/prosthesis expert guy got there. Brian and that guy are professional friends, so the guy agreed to look at my foot and see what he could do for free, since we don't have insurance or anything.

I told him about my club foot and the surgeries I had when I was little and where it usually hurts and where/how it's hurting differently now. Then I told him how casts are usually the only thing that makes my foot feel better but how I usually just use an Ace wrap, but the Ace wrap itself starts hurting me after a while because it's so tight. I also told him about the AFO (ankle foot orthotic) I had when I was little, which was basically this plastic brace thing I had post-op to keep my foot in its new shape. The guy examined my foot a bit and poked and prodded.

Finally he said he'd give me a brace to wear at night to keep my foot at a 90 degree angle kind of, which will help to stretch my Achilles' tendon, because otherwise my foot just flops downward because all the tendons and things in there are so TIGHT. He also said he'd give me an AFO (or AFO-like brace) for wearing during the daytime. This apparently doesn't have to be custom made, so it'll be cheap, like 30 bucks (and the night brace will be about 60), and he said as a professional curtesy to Brian he'd just order and ship them to me for free since Brian refers a lot of patients to him; it's a nice symbiotic relationship, and it means free leg braces for me! So those should arrive at my house during the time I'm in Milwaukee and I'll have them to recover with when I get home. :-P And, also, the orthotics guy said that if the regular old braces don't help, then he'll get out his little casting kit and blue marker to make a nice little mold of my foot and custom make me a brace like I had done when I was little. But that's about $500, so we're gonna try the non-custom made braces first.

Me and my dad and Brian thanked the orthotics guy and [SNIP, not relevant . . ]

Anyways, I'm happy about getting my braces . . . but for now my foot hurts A LOT, and I was nearly crying when I got home. I can't flex it at all, so I'm just kinda keeping it limp, and you know how when you do that sometimes, it gets kinda "stuck" or like, half-asleep in that position and it hurts when you start to move it again a little? Well, I have that thing going on, too. *sigh* One more week, I'll get back from Milwaukee and have nice braces waiting for me. Hopefully that'll help. *crosses fingers*
linkpost comment

Continuation of my foot saga [Mar. 12th, 2004|01:40 pm]
Clubfoot Discussion Community

saturn939
[mood |hyperhyper]

In other news, my dad was on the phone with my cousin Brian this morning, talking about the pain in my foot I've been having lately. DUH, I COMPLETELY forgot that like, half the people in my family are nice little Jewish doctors! Brian is a doctor in NYC, and I described the pain I was having and why it was concerning to me, and he said it sounded like I might have some sort of tendonitis. He suggested taking some anti-inflammatory medication until me and my dad get a chance to go out to NYC sometime next week, but I told him I didn't believe in taking medications, so he suggested maybe going to a natural foods store and asking if any herbs/vitamins they had might have anti-inflammatory properties, and so I said I might check that out. But, there is only so much diagnosing you can do over the phone, you know? So I said I'd rather wait to do anything until he sees me in person since the pain isn't TERRIBLE at the moment. I'm kind of hoping he can hook me up with a brace or removable cast of some sort, because getting casts always feels sooooooo good because it's doing all the supporting and the poor little underdeveloped muscle that I do have gets a break. However, you can't take casts off, which is why one of those plastic braces that really gimpy people always wear in the movies would be good. I had one when I was little.

But yeah, anyways, Brian said it sounded like tendonitis and that it sucked that I didn't have insurance because it's possible I'll need X-rays or an MRI to see if something was broken or whatever, and if that's the case then I'll need surgery. And I was like, "WHACHU TALKIN' 'BOUT??!" No more surgeries for me, thankyouverymuch. Silly doctors, always thinking of the worst possible scenario and blowing things out of proportion. *pfft* Let's hope nothing is broken and I don't need surgery. If it was broken, would I still be able to walk around on it anyways? I've never broken a bone in my life. Hmph. The silly pain'll probably go away in a few days anyways and all this worry will have been for nothing.
linkpost comment

Cross posted from my own journal [Mar. 11th, 2004|11:22 pm]
Clubfoot Discussion Community

saturn939
[mood |soresore]

My foot has been hurting since Chicago [two weeks ago]. I did a lot of walking in Chicago, which I'm sure contributed to the pain a little bit, but usually when I stress out my foot because of too much walking, it's back to normal in about a week. However, my foot's been hurting, like I said, since I got back from Chicago. Normally I just deal with the pain, wrap my foot with an Ace bandage or whatever, and I complain about it to whoever will listen because it makes me feel better. However, the pain in my foot turned from a dull ache today into sharp, shooting pains. In addition, my foot isn't hurting where/how it usually hurts (which is around my ankle, a general soreness); rather it's hurting on the front of my shin and whenever I flex my foot up or down, the pain shoots to the front and sides of my ankle joint and down the sides of my foot. If I had insurance I'd probably go right to the doctor just to make sure nothing's wrong. But we don't have insurance and I'm hesitant to ask my dad to foot the bill, especially if I need X-rays or casting or something expensive like that.

If the sharp pains keep up for a few more days, I'm gonna call Connecticut Children's Medical Center, which is where I went when I was a baby for my operations and when I was a teenager for my casts. They're the only people who've ever dealt with my foot, so if they say I'm too old to go back there, I'm gonna have to find another orthopedic doctor somewhere . . . . That's kinda scary for me. I don't trust just anyone with my foot.
link2 comments|post comment

Cross-posted to my own journal [Feb. 20th, 2004|07:19 pm]
Clubfoot Discussion Community

saturn939
[mood |okayokay]

The first place I went after I left my house this morning was PayLess Shoes. They were having their "buy one get one half off" sale, which is wonderful as I always buy two pairs of shoes. However, shoe shopping is always slightly traumatic and frustrating, so I don't look forwards to going that often. The first shoes I liked were white sneakers with sparkles on them, and I found them in the size that fit my right foot but not in the size that fits my left foot. Grr! I considered just buying the one pair, but then I had mental images of me tripping over the 3 inches of empty toe space in my shoe and falling down, so I decided against it. The second pair of shoes I found were not quite sneakers and not quite dress shoes . . . they were either sneaker-inspired shoes or shoe-inspired sneakers. I found those in both the sizes I needed (7 and 9), and it only cost me 25 bucks for the two pairs. Not too shabby!

Does anyone want a pair of brownish shoes, left size 9, right size 7? Really, I seriously would be more than happy to ship them if you send me 5 bucks to cover shipping costs . . . I'd rather see my leftover shoes go to a happy home than in the garbage. :)
link3 comments|post comment

navigation
[ viewing | 10 entries back ]
[ go | earlier/later ]