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New here [Oct. 28th, 2008|06:11 pm]
Clubfoot Discussion Community
clubfeet
[wernerm1979]
[mood |happyhappy]

I'm Werner form Germany and I'm new to livejournal!


My story:
I was born with a left clubfoot and after casts & braces I got surgery to lengthen my achilles heel tendon. After several new braces and special shoes my foot was still in a slight "clubfoot-position" (high arch, walking on outer side of foot) and so I got a second surgery at age 4. From now on, my foot looks overcorrected (flat arch, collapsing to the inside) and I wore orthotics and got physical therapy for several years.

Since my adult-hood, my left foot is about two sizes than the right and the leg itself is a bit shorter, too. I'm wearing orthotics but haven't got good ones for several years and changed the orthopedist and technician several times!?

But luckily, I have very little pain and besides the crooked position, thin calve and ugly scars on back and on the inside of my foot, it works fine till now :-)


I was struggling to find other adults with clubfoot, so I've created a "adults & teens with clubfoot" group on facebook and all "clubfooters" are welcome, I've also made a link back to this livejournal! I hope both communities become a little bit more active!


If you have any questions, want to chat or have any experiences with orthotics, send me a mail!


bye
Werner
linkReply

Comments:
[User Picture]From: saturn939
2008-10-28 05:22 pm (UTC)

Thanks for your intro! Your story sounds very familiar. I also noticed that there weren't a lot of places for adults with clubfeet, just information on babies with it. Thanks for the Facebook group, too.

-Dee
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[User Picture]From: prettyh
2008-10-29 10:30 am (UTC)
Welcome! Yes, there don't seem to be many resources out there for us grownups. But the Facebook group is a great idea! What's the link to it? I'll post it on the userinfo for this community!
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From: wernerm1979
2008-10-29 01:59 pm (UTC)
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[User Picture]From: prettyh
2008-11-03 03:19 am (UTC)
Thank you! I'm posting it as we speak. :)
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[User Picture]From: tryingtocare
2009-04-23 05:41 am (UTC)
How do I post something on here?

As an Entry?
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From: wernerm1979
2009-04-23 06:22 am (UTC)
It's bit irritating:

1) Log in
2) See the top of the clubfoot-community where you can read the entries
3) "You are a member of and are watching clubfeet
Post to this community" is written there
4) click "Post to this community"

Hope it works ;-)
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[User Picture]From: drbarbie16
2012-07-25 06:34 am (UTC)
I have Type III Bilateral Club Feet. I have probably had about 15 surgeries, but I have lost count over the years..... I have had bone grafts, arthrodesis, tendon release, whatever-it only works for a few years. But, I keep going, and keep struggling, and have managed to keep walking for most of my life. I have had stress fractures, and hairline fractures that I didn't realize, and broken bones while easily tripping over something. I have been on arthiritis meds, pain killers, motrin, etc until I realized that they all just don't work, so I stopped taking everything and just learned to deal with the pain and put it all out of my mind. My right foot is much worse than my left, so I have a noticeable limp some days, as well as no calf muscle on one leg. But, every day out of the wheelchair is a good day in my book! Most people with type III also have spina bifida, so I just always remember that, and be thankful every day for what I can accomplish. I have to walk with these gigantic orthotics that cost over $500, and I can't wear heels, or shoes for long periods of time-only sneakers. But I am greatful for my orthotics because they make walking comfortable for me.
I have always wanted to meet another person who knows what it's like to have a glimpse of what I deal with, what dealing with a club foot all your life is like. But, I still see my pediatric doctor, and always see little kids with this defect-never adults. I am 37.
Melissa
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From: vonvon1989
2012-08-17 05:15 pm (UTC)
Omg I'm 23 and having problems. I can't even wear high heels at all. An it seems like I cant even stand up for hrs at work. I only have it on one foot. And I never meet no one with the problem. But I did hear that males have it more then females. All my left I been tease about my leg cause one is bigger then the other and it was very depressing at times. I couldn't even play sports that much. But I did do cheer leader but had to quit due to the pain. But I hear that there are famous ppl who are in the NFL that have a club foot. I finally found a specialist and would be going to him on Thursday. Thanks for this blog I haven't meet no one who have this condiction cause it's very hard to explain to ppl who do not have it. Sorry for the short hand text through out this posting.
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From: caseyw1286
2013-03-29 05:34 am (UTC)
Hi, my name is Casey. I am new to the group. I was looking on the Internet and found you guys. I was born with a Club Foot and a Drop Foot in my left leg. I am now 26 and have been wearing a leg brace for practically my whole life. I was born with many other medical issues (but that's a story for another day lol). I am glad to have found this group and hope to share some of my experiences with others.
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[User Picture]From: Linzi A'Fortieri
2013-08-25 08:55 pm (UTC)
Wow, I'm glad to find this community. I made a request to join the Facebook group and hope to find some sense of inclusion through that. This problem I deal with affects my life in pretty much every area and I always keep quiet and tough it out alone although it often makes me very sad that I can't really talk about it. Thanks for being open about it.
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From: bigfoot465
2014-12-21 06:27 am (UTC)

clubfoot

Hi Everyone- I see some of you have been through a rough time of it. I grew up not being able to walk up right until i was 4 yrs old. Then through 4 surgeries later to help correct my clubfoot some. The 4 surgeries didn't fix it. They just gave me a way of walking. Then from a shoe and leg braces up to walking without a brace. It was a tough road as I'm sure some of you went through some tough times as well. In the years after that 4th surgery the cartilage wore out between the ankle bones. From 1985 until 1997 I walked on that run climbed,hiked and did just like everyone else. Wheelchair was never a option to me. Found a great dr in 1998 that took away a lot of the severe pain that I had endured over those years of my life. I let the surgery be video used as a study aid for future drs at that time of my last surgery. I hope they used it to help many folks that had clubfeet. Nice group. Rick
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