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on to doctor #5 [Aug. 31st, 2004|04:56 pm]
Clubfoot Discussion Community

clubfeet

[katie8471]
I cant believe we have been to all these docs and none of them say the same thing. Eric seems to agree with the one we saw today. he also looked at things the ped ortho in minneapolis didnt. here is the story
so we went to our own doc. she didnt think it was a
big deal at all but sent us to an ortho at our
request. that ortho said looks like club foot but I
dont have enough experience to say one way or another.
off to ped ortho who says yeah club foot we can fix it
with ponseti. but the insurance says no we wont pay
for you to go there. so there just happened to be a
local ortho who DOES ponseti that we didnt realize
before. we saw him today. he looked at the xrays we
had done at the ped ortho and said that isnt club
foot. its something else altogether. its similar to
what polio would have done. (perhaps he had polio who
knows, he was adopted from Russia.)
(or perhaps its from the congenital syphilis)
he said it seems
like a tendon is missing altogether. he does not
dorsiflex his foot. the tendons that pull it to the
inside are working fine but the ones that balance by
puling to the outside arent compensating and he thinks
its a neuro problem. so we are off to doctor number 5
in Iowa City. so far we have 4 docs 4 opinions. we
are scheduled for the 13 of sept. Eric may or may not
be able to go with me. I am incredibly bad at driving
and following directions. hopefully I can make it
there! maybe he will be able to get the time off. but
apparantly its right in the middle of a time they
really discourage time off. he wants to reschedule I
say no way its been put off too long and its getting
worse. does anyone know if a club foot worsens over
time if left to its own? his foot is definitely worse
than before. so there ya go. thats my story and Im
stickin to it.
linkReply

Comments:
[User Picture]From: saturn939
2004-08-31 10:49 pm (UTC)

does anyone know if a club foot worsens over
time if left to its own?


Yes, it does, especially when the child starts walking (and putting weight on parts of the foot that weren't meant to bear said weight).

-Dejio
(Reply) (Thread)
From: (Anonymous)
2008-05-27 05:51 pm (UTC)

Where are you at now with the possible clubfoot and no movement

Please elaborate on your current tx. I know your orignal post is old, but if you see this, please comment, my son was born with no active dorsiflexion...very curious.
(Reply) (Thread)
[User Picture]From: katie8471
2008-05-28 12:32 am (UTC)

Re: Where are you at now with the possible clubfoot and no movement

we are long past this. He runs and climbs and jumps EVERYWHERE. he never walks. We never found out WHY his foot did what it did but after getting the shuffle we went to shriners and they casted it for a few weeks, then braced it full time for a few months, then braced only at night, and finally no brace at all. it never relapsed. Shriners are great with orthopaedic problems and best of all its no cost to you.
(Reply) (Parent) (Thread)